Tuesday, May 11, 2010

Mayo Clinic Bound....

Mike's headaches and seizures are still the same. We realize it may take time for the meds to work and we are hoping that in the next few days we will see some relief and improvement. We have been in prayer and discussion as to whether or not he should keep the appointment he has had set up a the Mayo Clinic. That app't is with an endocrinology team. When we asked the neurologists from MGH if his endocrine issues could be the cause of all his neurological issues...they said they weren't sure. That is why they want him to see an endocrinologist and get a full work up. He has seen 2 endocrinologists in Ohio but they also were unsure about how the neurological issues were related to the endocrine. Rather than wait for the app't / referral from Boston, which could take a few weeks, he has decided to keep the Mayo app't. He is tired of all the back and forth between docs who don't talk to each other, the back and forth app't between neurology and endocrine, and the different opinions. At the mayo he would have a complete endocrine evaluation, which he hasn't had yet and if the endocrinologist wants to pull in neurology they would work together to evaluate, diagnose and make recommendations. The neurologist in Boston referred to the Mayo twice (he didn't know Mike already had an app't) and how well they do the team approach. He said he is sometimes frustrated by the way Boston does the team approach. Kathy and Mike leave for MN on the 18th and his app't is on the 19th. The Mayo told him to plan on being there for a week. They will fly (the train is too expensive and takes too long) and are praying his headaches don't get worse like they did the last time he flew.

No comments:

Post a Comment