We arrived at the Mayo this morning at 7:15 (did I mention I hate early?)
Mike was pretty tired as he did not sleep much, too many seizures... kept waking him up.
He put his name on the wait list and after about 10 minutes he was given an app't for 1:45! We were very thankful! We had 6 hours to wait so Mike decided to go to the patient resting room and sleep awhile. This is a really great idea they have...there is a room without windows so it is nice and dark. The walls are lined with recliners, shelves are lined with blankets and anyone who needs to rest has a place to go. Many of the patients here have more than one app't on the day they are here. For instance Mike has 3 app'ts set for tomorrow so if he wanted to rest in between he can. Many people we rode in with on the shuttle rode back with us at the end of the day. They looked as tired as we felt. It's been a long day for all of us. We're all starting to look familiar to each other at this point. One elderly man, who took the shuttle with us yesterday, was on the return trip with us today, only this time his wife wasn't with him. She may have been admitted to one of the hospitals. He looked sad and lonely today. The neurologist scheduled to see Mike was an hour behind schedule but that was fine, he spent an hour and a half with us. The first hour was to take medical history and to get very detailed information about what has been going on for the last almost 8 months. He ordered a few more tests, some have already been done and he suggested he see the neurologist whose specialty is epilepsy. When we asked about help for the headaches he indicated that there were meds that could be tired but because we are just at the diagnosing stage he didn't want to suggest anything yet. When I asked if there would be a plan before he returns home, he said there would be. We couldn't get an app't with the epilepsy neurologist until June 6th but we were told to put his name on the wait list and try to get in while we are still in town. We will try to do this in between app'ts tomorrow but may actually have a better chance of getting in on Tues since he doesn't have anything scheduled on that day. We leave Wednesday night so Wednesday could be a possibility as well. So today was a long day and we still don't have an answer but the doctors want to do their tests and then put together a plan.
On to day 3...
Thursday, May 20, 2010
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