Mayo: Day 3

Got back to our hotel a little earlier today. That was nice! We arrived again at the clinic around 7:15 this morning. Have I mentioned how I am not a fan of early? Mike went right to his app't at the lab. Then we got on the wait list for the epilepsy dr. but did not get in. The best we got was an app't for Wednesday. We are scheduled to fly home that night. There has been some talk about the possibility of hospitalizing him to do another overnight video EEG. That has not been scheduled at this point. We will return early again on Monday to try to get in to see the epilepsy doc by going on the wait list again. We would like to get in to see him ASAP so if they do want to hospitalize him they can do that while we are here and so we won't have to extend our stay. The only things scheduled for Monday so far are more labs. Today we saw the endocrinologist and went over lab results. We know that his endocrine problems do not come from his pituitary gland so now we look to see if they are a result of the adrenal glands. He had another neck extension x ray done to determine if his dens bone (in the neck area) is unstable and causing him to pass out. If you remember, he had passed out on 3 other occasions when they tried to do this...well not wanting to disappoint...he passed out again during the procedure...3 times. He wasn't out for long but still the results are the same when he puts his neck to his chest. According to the radiologists his dens bone is stable. Hoping the neurologist has some answers. The last test that was done today was an EEG, but this one was much different than the ones done in the past. While he was hooked up they had him do various activities, like reading and looking at illustrations. Then they flashed strobe lights all around him but left out the disco music! He did sleep about 20 minutes during the test (before the lights) but he did not have a seizure. Not sure what we will do over the weekend. I know sleeping in is on the schedule! Other than that, we might check out the Mall of America.

More on Monday!